Author Archives: Becca Dixon

Brighton marathon success

Emily at Brighton MarathonBristol-based runner Emily Dixon took part in her first marathon on Sunday 17 April and raised vital awareness of MND along the way.

Emily did fantastically well in her first-ever marathon and completed the course in 5 h 41 min – a personal best! Emily was supported by friends and family members, and crucially, received a high five from Zoe Ball (who started the race), to help her to the finish line!

Far from deterred at the somewhat daunting task of completing the 26-mile course, Emily fought through muscle fatigue and hunger (!) to cross the line, making herself and her supporters very proud. Emily at Brighton Marathon

She is pictured taking on some jelly babies for fuel halfway round the course, and in the MNDA tent proudly displaying her medal, at the end of the race.

On top of her incredible personal achievement, Emily has raised over £800 for the MNDA, a proportion of which will go directly to helping people living with MND in the Bristol and Bath area.

Not content with one marathon under her belt, Emily has confirmed she has just signed up for next year’s Brighton marathon!

Good luck Emily and keep flying the flag for MND!

‘Right Chair, Right Time, Right Now’ – pledge your support

Right Chair, Right Time, Right Now!Jean Waters, Chair of the MNDA Gloucestershire Branch, is a member of the Wheelchair Leadership Alliance, which formed in January 2015 under the leadership of one of the UK’s best known Paralympic athletes, Baroness Tanni Grey-Thompson. This Alliance is a commitment
group campaigning for a better deal for wheelchair users and aims to transform the quality and effectiveness of services across England.

Pledge support for – The Wheelchair Charter

A dual approach has been adopted to improve wheelchair service provision and therefore to improve people’s lives as quickly as possible: the ‘Right Chair, Right Time, Right Now’ campaign, and the development of a ‘Wheelchair Charter’, which were both launched on 20 July 2015.

The Wheelchair Charter outlines ten principles by which wheelchair services should be commissioned and delivered to ensure that people get the Right Chair at the Right Time. We are asking service users, manufacturers, providers, voluntary sector organisations, commissioners, clinicians and members of the public to pledge your support for the charter principles and the need for those in power to commit to delivering against them. By pledging your support we will, together, be able to start the change, commit to better service delivery and an improved quality of life for every wheelchair user.

We urge you all to visit the links below and sign the charter. You can also write to your MP and Clinical Commissioning Group to ask them to pledge their support for the charter.

Pledge support for – The Wheelchair Charter

Article by Jean Waters, Chair Gloucestershire Branch MNDA and Wheelchair Alliance member

Join us at Bath Christmas Market

Bath Christmas MarketWe are thrilled to have been allocated a stall at the Bath Christmas market this year. Plans are well underway for Sunday 6 December, when we’ll take over the charity chalet for the day (10 am to 6 pm).

It’s a lovely spot by the abbey, and in the past, we’ve found this to be a very enjoyable and effective means of raising awareness of MND and raising much needed funds.

On the day we will be handing out of information about MND, our local group, and the national organisation; selling certain MND merchandise, mainly Christmas cards; and running our very popular tombola.

If you would like to help us, we would appreciate any donations of new or unused items for tombola prizes*, and if you have time to spare and can help on the day, we have a roster covering one hour slots at the chalet throughout the day (please contact Andrew Grundy – Andrew@mnd-bbww.org) and your help would be very much appreciated.

Please share this information with friends and family members who might be interested too.

*Please contact Becca (Becca@mnd-bbww.org or 07967273595 to arrange delivery/collection of your donation(s)