As you know, one of the things people with MND worry about is losing their voice, that’s why ‘losing your voice’ is at the heart of our new fundraising activity.
A huge thank you to those of you who have signed our MND Charter and supported us over the last three years by promoting it and gathering signatures. We now have 29,000 signatures. Our target is to reach 30,000 by midnight on 6 May.
Please help us by sharing this link mndassociation.org/charter with everyone you know. The signatures will be presented to No. 10 Downing Street during Awareness Month.
The Theory of Everything is a biographical romantic drama inspired by the book ‘Travelling to Infinity: My Life with Stephen’, written by Stephen’s first wife Jane. We were pleased that the Cineworld chain of cinemas gave the MNDA permission for local branches and groups to make collections at the screenings on 2 January.
We went along to Cineworld, Hengrove in Bristol donning our MNDA T-shirts and raising awareness and funds for MND. It was a quiet afternoon at the flicks, but even if we reached only a handful of people, it was well worth it.
Several of us from the BBWW group have been to see the film and thought it was excellent. Although tough to watch for anyone affected by MND, the acting was fantastic and Eddie Redmayne did a great job of portraying Professor Hawking. The film has been hailed a great success, and we hope that the widespread appeal of the love story will spread awareness of MND across the country.
Not so long ago the idea of throwing buckets of ice-cold water over ourselves as a fundraising idea would have been laughed at. However…we have now seen how social media can ignite even the most unlikely of ideas and enthuse even the most reluctant of us to take part in the Ice Bucket Challenge. This frosty challenge has become a worldwide phenomenon and has raised incredible funds for the MNDA and much needed awareness of MND.
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Staff and volunteers connected to the Bristol MND Care Centre got involved on the grounds of Southmead in early October. Two AVs – Solomia in the grey top and Heather on the extreme right took part with Andria (neurologist), Helen (co-ordinator) and various other therapists connected with the Care Centre.
AV – Gemma Storrs
Several of us at the BBWW MNDA group also joined the craze by accepting our nominations, dowsing ourselves in the cold stuff and sending off the all-important text, or donating online.
Gareth (with brothers) helped to spread the word further by challenging our local MP, Charlotte Leslie, who succumbed to the pressure of several nominations and rose to the challenge in style.
Gareth Weaver and brothers Simon & Adam
Not content with just one soaking, Ms Leslie charged onlookers to watch her take on the Ice Bucket Challenge in public, and invited them to donate £5 for the privilege of pouring their very own bucket over her. Good effort Charlotte!
Thank you to everyone who has taken part and captured themselves on camera.
If you don’t fancy the thought of having a bucket of ice thrown over you there are plenty of ways you can volunteer to help support the group and MND Association.
Just take a look at our Volunteering page and get in touch!