The Bristol Motor Neurone Disease (MND) Care Centre was established in 2012 as one of 21 specialist MND centres, recognised & funded by the Motor Neurone Disease Association in collaboration with the NHS.
The Care Centre is a regional centre (seeing people from Bristol, Bath, Somerset, Gloucestershire, Wiltshire & further afield) that works closely with local community teams to ensure excellent care & support for people living with MND, their families & carers.
The Care Centre also see people with related conditions and those for whom the diagnosis is unclear.
Where is the MND Care Centre?
The Care Centre is based in the neurology department at Southmead Hospital, where the clinics will be held, but the MND care coordinator will link in with community teams across a wide area.
How is the centre funded?
The MND Association has provided funding for:
- a full-time care MND care coordinator to provide help and support to people living with the condition and their carers and families
- a Counselling Psychologist to provide emotional and psychological support for people living with the condition and their families
- some equipment
Who is in the Care Centre team?
The Care Centre have a dedicated multi-disciplinary team with expertise in the management of MND. This includes:
- an MND care coordinator
- Consultants in Neurology, Respiratory & Palliative Care Medicine
- a Neurology Specialist Registrar
- Occupational Therapists
- Speech & Language Therapists
- a Counselling Psychologist
- MND Association Visitors
What happens at the Care Centre?
The team based at the Care Centre will:
- hold regular clinics for people who are suspected of having MND or who have been diagnosed with the disease
- provide advice and support for health colleagues in neighbouring counties
- link in with local community teams in a wider area
- provide an education programme for healthcare professionals
- link in with research centres
How often are the clinics held in Bristol?
There are two MND clinics held each month at Southmead, and in addition, a clinic held once a month at the Bristol Royal Infirmary jointly with a respiratory consultant, for people with MND who need help with their breathing.
I currently see a Neurologist at a different hospital. Do I need to go to Bristol instead?
Your Neurologist may refer you to the MND Care Centre in Bristol if a second opinion is needed, if your care is complex, or if you request a transfer of your care.
Are there any clinical trials taking place in Bristol for people with MND?
Not at the moment, but there is an aim to increase the amount of research that people with MND can access in the area in the future.